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In the Top 10 of Kidney Donor Blogs

Wear a Mask! The Life You Save May Be My Son’s

As a kidney recipient, my son, Paul, and other transplant recipients have to take essential anti-rejection medications to keep their bodies from rejecting the precious new organ they were given. Unfortunately, to avoid rejection, the meds have to lower the body’s natural immune system. The trick is to do that without the recipient’s getting an … Continue reading Wear a Mask! The Life You Save May Be My Son’s

Real Funds and Real Sun for a Virtual Kidney Walk

Well, my husband, son, and I participated in the 2020 North Carolina virtual kidney walk this weekend. Yes, it was different from all the others we’ve walked in, but many things were familiar. Most important was the opportunity to raise sorely needed funds for kidney disease research and awareness. By the end of the day, … Continue reading Real Funds and Real Sun for a Virtual Kidney Walk

Still Walking After All These Years–But Virtually

Another Kidney Walk date is approaching: Sunday, November 15. My husband, son, and I (our daughter’s up in Brooklyn) will be “there” as usual. Because of the pandemic, this year everyone will be walking in their own neighborhood or location of their choice in the 2020 North Carolina Virtual Kidney Walk. That’s a first. We’ve … Continue reading Still Walking After All These Years–But Virtually

Rewrapping the Greatest Gift

If you’ve been following this blog and are familiar with my site, you already know that I’ve been writing a book on living kidney donation with a live-donor kidney recipient, Betsy Crais. It’s long been tentatively titled The Greatest Gift: The Insider’s Guide to Living Kidney Donation. Now that we’re down to the review process … Continue reading Rewrapping the Greatest Gift

Celebrity Kidney Recipients: Please Share Your Stories!

They’re athletes, actors, and musicians of different ages, races, and ethnicities. So, what do the celebrities listed below have in common? They’re all healthier, and very likely happier, because a living kidney donor gave them a shot at a better quality of life. The best way to shorten someone’s wait for an organ–rich or poor, … Continue reading Celebrity Kidney Recipients: Please Share Your Stories!

Zooming into DC for a Unique Virtual Kidney Patient Summit

Instead of flying to Washington, DC, in March with other advocates for the National Kidney Foundation Kidney Patient Summit as planned pre-COVID, we Zoomed and Hopped in last week for virtual meetings on Capitol Hill. Admittedly, virtual was less of a kick than the real thing, but it was surprisingly effective in garnering cosponsors for … Continue reading Zooming into DC for a Unique Virtual Kidney Patient Summit

Helping Donors and Would-Be Donors, 1 Visitor at a Time

Well, this is exciting: I just hit the 5,000-visitors mark–and more than 7,000 views! I launched this site officially last year with a blog post, fittingly, on National Kidney Month and National Women’s Month–and what these amazing specimens have in common. As a living kidney donor myself (I donated to my son in 2006), my … Continue reading Helping Donors and Would-Be Donors, 1 Visitor at a Time

Don’t All Donors Deserve Donor Shield?

I’ve been emailing, calling, and visiting state legislators and members of Congress for a long time about supporting and protecting living donors. I don’t mean the feel-good kind of support that calls us “heroes” and “awesome folks” but takes no action. I’m talking about finding meaningful ways to remove hurdles that can be deal breakers … Continue reading Don’t All Donors Deserve Donor Shield?

A Time to Celebrate

I think it’s only fair to warn you that this short post has absolutely nothing to do with kidneys, organ donation, or advocacy. But today is a special day, and attention must be paid. Today, amazingly, marks 50 years since my husband and I got married on a rainy Friday night in New York City. … Continue reading A Time to Celebrate

Reimburse Living Donors’ Lost Pay–and More

Several months ago I was excited to learn that financial assistance for living donors was going to be substantially expanded—encompassing more people and for more kinds of noncovered expenses, like lost wages, childcare, and eldercare. As a living donor and advocate, last year at this time I provided public comment on the subject and followed … Continue reading Reimburse Living Donors’ Lost Pay–and More

Celebrating Milestones

Most of my kidney-related milestones mark the number of years since I donated to my son (2006), who was diagnosed with chronic kidney disease when he was in college. This month I get to celebrate a different kind of milestone: one year since I launched this website! I didn’t know what to expect when I … Continue reading Celebrating Milestones

Happy National Kidney Month and National Women’s Month!

Yes, March is National Kidney Month and National Women’s History Month. What do kidneys and women have in common, you ask? For starters, both are underappreciated. We can hope that someday we will get to a point where we don’t need to introduce people to integral aspects of our culture and our history (like Black … Continue reading Happy National Kidney Month and National Women’s Month!

Celebrity Kidney Recipients: Please Share Your Stories!

They’re athletes, actors, and musicians of different ages, races, and ethnicities. So, what do the celebrities listed below have in common? They’re all healthier, and very likely happier, because a living kidney donor gave them a shot at a better quality of life. The best way to shorten someone’s wait for an organ–rich or poor, … Continue reading Celebrity Kidney Recipients: Please Share Your Stories!

Happy National Donors Day!

Happy Valentine’s Day AND National Donors Day! You don’t need to be a living donor like me to be able to someday save a life–or several, in fact. If you don’t have that little heart on your driver’s license and haven’t already registered as an organ donor, please don’t wait to renew your license: go … Continue reading Happy National Donors Day!

Getting Closer to Extending Drug Coverage for Transplant Patients

A while back I wrote here about the insanity of cutting off lifesaving drug reimbursement for kidney patients. I’m happy to report some real progress on that front. At long last, a bill to extend Medicare coverage for kidney transplant patients–and Honor the Gift of life–is ready for a committee hearing this week! HR5534 is … Continue reading Getting Closer to Extending Drug Coverage for Transplant Patients

Wondering Who Gave a Kidney to Stevie Wonder?

You may have heard that Stevie Wonder had a kidney transplant recently from a living donor, and, fortunately, all is well. There’s been much speculation about the identity of his donor. If you too have been speculating, let’s test a few assumptions–and clarify a few things about living donation while we’re at it. What do … Continue reading Wondering Who Gave a Kidney to Stevie Wonder?

Bonding with State Legislators

The idea of meeting with state legislators to push for protections for living donors sounded a bit intimidating at first. I’d often emailed legislators and committee members, of course, and called my members of Congress about a national Living Donor Protection Act, but in-person meetings were a whole new ballgame. That’s what advocates do, though, … Continue reading Bonding with State Legislators

Powerful Push to Promote Public Awareness of Kidney Disease

I’ve long been amazed and frustrated that most people know little about kidney disease and are unaware of the public health crisis: nearly 100,000 people in this country are waiting for a kidney from a deceased donor, and most will wait several years. For many, that’s too long, and thousands die every year because they … Continue reading Powerful Push to Promote Public Awareness of Kidney Disease

The Top Kidney Donor Blogs

A short while ago I came across “The Top 30 Kidney Donor Blogs and Websites to Follow in 2019.” It lists individual personal blogs from donors and recipients, plus from major organizations (nearly half of the websites listed, in fact) like the National Kidney Foundation and the National Foundation for Transplants. Last week I noticed … Continue reading The Top Kidney Donor Blogs

Living Donor Champion Redux

This week Betsy Crais and I spoke at another terrific Living Donor Champion workshop. I’ve written about the one we did in the spring at UNC Transplant Center plus the National Kidney Foundation’s Big Ask, Big Give in June at Rex Hospital in Raleigh, NC. It’s funny that I’m starting to feel so comfortable at … Continue reading Living Donor Champion Redux

Covering Anti-Rejection Meds Should Be a No-Brainer

Ever hear of the Immunosuppressive Drug Coverage for Kidney Transplant Patients Act? I didn’t think so, but we need to make sure that members of Congress hear about it. You already may know that virtually all (yes, I know of one exception) kidney transplant patients, unless they got the new kidney from their identical twin, … Continue reading Covering Anti-Rejection Meds Should Be a No-Brainer

Kidney Swaps and Vouchers and Chains, Oh My!

I was delighted to hear from fellow WELD (Women Encouraging Living Donation) member, Michele Hughes, that her son Dan had just had a successful kidney transplant, at New York-Presbyterian/Weill Cornell Medical Center. Like me, Michele had wanted to donate her kidney to her 20-something son with kidney disease. In their case, though, it wasn’t possible. … Continue reading Kidney Swaps and Vouchers and Chains, Oh My!

Howl the Owl and Brenda Cortez Help Kids Grasp Organ Donation

I first met Brenda online a couple of years ago through a Facebook living donor support group. We were both so moved by having donated that we became strong advocates for donation awareness and went a step further in deciding to write books about donation (hers for young children, mine for adults). I was excited … Continue reading Howl the Owl and Brenda Cortez Help Kids Grasp Organ Donation

The Big Ask, The Big Give

After a terrific workshop for kidney patients and their families and friends on Sunday, I was initially inspired and encouraged at all the valuable resources and options available for finding a donor: paired donation (aka “kidney swaps”), social media vehicles for spreading the word, financial assistance for travel and lodging, and sophisticated fundraising plans. These … Continue reading The Big Ask, The Big Give

How “The Greatest Gift: The Insider’s Guide” Idea Originated

As you may know, some of the information for this site comes from the book The Greatest Gift: The Insider’s Guide to Living Kidney Donation, which I am writing with Betsy Crais, a live-donor kidney recipient. As we come into the final lap of the book’s marathon preparation, I thought it was time to share … Continue reading How “The Greatest Gift: The Insider’s Guide” Idea Originated

Expanding Aid to Living Donors: Dear Committee Members

May 20 was a big day. The committee that advises the federal agency with the power to expand financial aid to living donors held a meeting and heard a dramatic plan from the National Living Donor Assistance Center (NLDAC). The plan would not only markedly expand eligibility but would extend coverage for significant living donor … Continue reading Expanding Aid to Living Donors: Dear Committee Members

WELD-What Do Living Donors and Transplant Folks Talk About?

When living donors (women) and transplant professionals (men and women) get together, what do they talk about? Well, if a recent meeting of a local WELD (Women Encouraging Living Donation) chapter at my house is any indication, assorted animated discussions could cover the following: Spreading the word of the urgent need for living donors to … Continue reading WELD-What Do Living Donors and Transplant Folks Talk About?

Good News for Living Donors: Financial Assistance!

You may already know that the costs of the donor testing and surgery are covered by the recipients’ insurance. That’s true whether they have Blue Cross or any private insurance, Medicare, or Medicaid (usually—every state is different). That’s great, right? Absolutely, particularly if you have adequate paid sick leave and no additional childcare or travel … Continue reading Good News for Living Donors: Financial Assistance!